Originally Posted by Joes93Bronco
Loran is doing ok. we have begun to taper her dosage of Prednisone (steriodal anti-inflammatory) which is great cause it makes her a little (alot) crazy. should hopefully have her weaned off of it in 9 more days. then she'll only get it in bursts, not everyday.
Yeah, I know the Prednisone jitters well. When I got out of the hospital from the transplant, I was on 30mg I think it was. I would sit and wiggle my toes and not even be aware of it, just fidgety. Glad they're gonna taper and stop it, it can be rough on your bones.
Glad your little girl is doing ok with it so far. Hang in there, it'll all work out. Haven't read this whole thing and don't know if you're a religious person, but God watches over little children...and their parents, too.
Originally Posted by scheki
I thing that I wish I would have done was kept a journal. No that I look back I don't remember the correct dates, what I did at a certain time etc.
Yeah, this is a good idea. There's been several times when filling out forms for disability where I've had to think back over a couple years and try to remember who I saw and when I had a procedure done. Definitely would have made those times simplier if I had it all written down in one place for quick reference.