Well we been a little busy lately, so sorry about takin so long.
Was a pretty crazy week. We got up to Portland Sun. afternoon and got a motel room. Took the kids swimmin, ate dinner, and crashed early. I got up at 3am and got my son ready to go. We went down and ate breakfast then took the shuttle to PDX. He flew out for Grandpas in North Carolina at 6am. Pretty sad. Dont get to see him til next summer. He is havin a blast with the G-Man tho so thats kewl. Caddying for him in a golf tournament this weekend.
We then headed out for OHSU to the nuclear medicine dept for Lorans bone scan. We were told the appt. was for 1130am and to be there an hour early, so after gettin her port accesed at the oncology clinic we got there at about 1015am and they said we should have been there at 0830am to get the radioactive isotope injected. Well we were pretty pissed cause they didnt tell us that. They needed the 2 hours to get it runnin thru her system. So since she didnt have it, they couldnt sedate her, so the pediatric sedation specialist doctor left to goto their next appt and we had to wait almost 5 hours later to get it all done. Very stressfull and very agravating. So we went the movies and saw Monster House. Not for little kids. Scared the hell outta the baby. Oops.
The next day we had her port accessed again and headed over to the MRI dept. Everything goin great and right on time until she slipped while playin in the playroom and BENT the needle goin into the port. Started screamin bloody murder. Crap. The nurse sent us back to the clinic to check it out so we rushed over and they checked it. It was still drawing and flushing fine so they taped it up real good and we rushed back. Still had to wait forever cause the whole port checkin thing caused us to miss our appt. and the pediatric sedation doc had to move on AGAIN.
Well after a lot of cryin by the wife and several Starbucks coffees for her to calm her down, they finally got it done. The process took almost three hours after they got started. We then went back to the clinic and saw the head doc who told us the good news (hurrah!). So we headed back to the Ronald McDonald house, had some dinner, and the girls and Angela attended a b-day party for one of the sick little girls stayin there while I bopped across town and saw Clerks 2 with my buddy Mike.
So the good news went like this:
1. The one in her skull next to the brain = shrunken but a little is still there
2. The one above her eye that was removed = Looks like a little came back and there is some residual stuff there but it's goin bye-bye
3. The two in her neck = cant see em (YEEHAH!!)
4. The one in her chest = cant see it either
5. The one on her 9th rib = gonski
6. The one on the 12th vertebrae = still there, shrunk up to almost nuthin
7. The one on her left femur by the hip = No can see nada (All right!)
So she still has three left but they are shrunken and almost gone. They have moved her onto the "maintenence phase" of her treatment. She will now get a shot of chemo every three weeks now instead of once a week. She will have a five day "burst" of prednisone after each shot of chemo (stuff makes her crazy
) and she has started a new chemo drug that is in pill form that she takes once a day. Some sorta lower dose drug. She will have to keep to this for 40 weeks (the rest of her one year treatment).
As far as the insurance goes, we got enough in donations and re-imbursements to pay for one month of continuation. That will cover this trip to Portland and the new scans. After July tho we will be goin with the Medi-Cal (we all qualified except my son cause he lives in Ohio. His mom will have to do sumthin else for him. Its the only downside to all this and I hate it)
We will prolly be goin to San Fran at the end of next week to get established with a new pediatric oncologist specialist. We will still get to goto Medford for her 3 week shots cause they are so close to Cali that they take Medi-Cal but no more Portland
We also got hooked up with C.C.S (California Children Services) and they will foot the bill for all travel expenses.
So some stuff is lookin up
Now I wish I could get my workmans comp crap over with.