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Discussion Starter #241
Just had her 6 week check-up. Everything once again looks a-ok so the are moving her back the the 3 week maintenence phase. Chemo every three weeks with a one week long burst of the prednisone. I am so glad the prednisone is over now. She can't fit her clothes!! She has bulked up so much that the port, which usually sticks out so far it looks disgusting, is now almost flush with her skin! First time I noticed that it freaked me out and my wife laughed at me. She has seen her naked more than me, and she has been goin to the doc appt's by herself so that I can get our oldest girl to school, so she noticed the port hting first and the doc told her it was just the weight gain from the drugs. Make me so glad my girls are so thin (dunno how THAT happened but sure am thankful), and that she will go back to it when this is over.

In other news my older daughter Taran had a check-up at the doc's and they found that she is unable to move her left eye all the way left. When she looks sideways her left eye stays lookin straight ahead while her right eye turns. Looks kinda creepy. So he referred her to an eye specialist who says it is called "sixth nerve palsy" and that she needs an MRI. Which of course freaked Ang out. Me too. The MRI is needed cause it could be something inside pushing on the nerves causing this. Not good. We don't want anything in her nugget that ain't SUPPOSED to be there. Not on another one. MRI's on kids are scary, as I've said here before, cause they gotta knock your kids out to do it. They can't move at all during the test. So they sedate em and strap em down. If you haven't seen this, it is a scary thing.

The funny thing is, is that I am positive that both my dad and sister have this. I told the doc that, but he said it isn't a genetic thing, and they must have something else. I don't talk to my sister cause she is a lowlife bitch, and my dad says he don't know anything about it. Weird. Maybe I'm nuts? And just imagining it cause I don't like to think about the alternative.
 

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I'm sitting here at work reading this with tears in my eyes. This is the first time I've seen this thread.

I don't know what to say.
You have two very happy and cute looking girls. My thoughts are with you, I hope it all works out for the best.

Good luck!
 

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Just had her 6 week check-up. Everything once again looks a-ok so the are moving her back the the 3 week maintenence phase. Chemo every three weeks with a one week long burst of the prednisone. I am so glad the prednisone is over now. She can't fit her clothes!! She has bulked up so much that the port, which usually sticks out so far it looks disgusting, is now almost flush with her skin! First time I noticed that it freaked me out and my wife laughed at me. She has seen her naked more than me, and she has been goin to the doc appt's by herself so that I can get our oldest girl to school, so she noticed the port hting first and the doc told her it was just the weight gain from the drugs. Make me so glad my girls are so thin (dunno how THAT happened but sure am thankful), and that she will go back to it when this is over.

In other news my older daughter Taran had a check-up at the doc's and they found that she is unable to move her left eye all the way left. When she looks sideways her left eye stays lookin straight ahead while her right eye turns. Looks kinda creepy. So he referred her to an eye specialist who says it is called "sixth nerve palsy" and that she needs an MRI. Which of course freaked Ang out. Me too. The MRI is needed cause it could be something inside pushing on the nerves causing this. Not good. We don't want anything in her nugget that ain't SUPPOSED to be there. Not on another one. MRI's on kids are scary, as I've said here before, cause they gotta knock your kids out to do it. They can't move at all during the test. So they sedate em and strap em down. If you haven't seen this, it is a scary thing.

The funny thing is, is that I am positive that both my dad and sister have this. I told the doc that, but he said it isn't a genetic thing, and they must have something else. I don't talk to my sister cause she is a lowlife bitch, and my dad says he don't know anything about it. Weird. Maybe I'm nuts? And just imagining it cause I don't like to think about the alternative.
Well Joe I hope things work out, you guys need a break. Give the girls a hug from all of us at FSB!
 

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Wow Joe let us know what the MRI says and in the mean time we will throw some prayers your way man.:shocked
 

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Discussion Starter #245
I'm sitting here at work reading this with tears in my eyes. This is the first time I've seen this thread.

I don't know what to say.
You have two very happy and cute looking girls. My thoughts are with you, I hope it all works out for the best.

Good luck!
All good thoughts are very much appreciated

Well Joe I hope things work out, you guys need a break. Give the girls a hug from all of us at FSB!
Breaks are for pussies apparently. Will do on the hug part.

Wow Joe let us know what the MRI says and in the mean time we will throw some prayers your way man.:shocked
Thanks Dale. Haven't seen any updates on you guys. Hows things?
 

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Got some prayers for you and yours...been through some times my self....prayers will make life run smoother
 

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Thanks Dale. Haven't seen any updates on you guys. Hows things?
We are just waiting on the next treatment right now. His body is fighting the antibody treatment so we have to wait until his body stops fighting the treatment before we can keep going with it. They call it "hama positive" (sp) which means no treatment until he is negative and that could take 9 to 10 months. He can't have any more chemo or radiation either. At this time we are just waiting to see what happens and during this time the cancer can do what it wants.

At this time we just try to live as normal as possible and pray that his test come back negative so we can continue with treatment.
 

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Well my older daughter had her MRI yesterday. What a day. Left here at 430am for a two hour drive to Eureka to St. Joe's hospital. Her appt was at 7 and we got there at 630am. Got admitted to the pediatrics ward and then sat there doin nuthin until almost nine. Then a gurney shows up to transport her and we go down and they are like, "Why doesn't she have an IV in?" We were told that they would do this when we went down. So there was this big scramble with people runnin all over to get this stuff. Nice. Not even set-up to do a damn thing. So with all this business goin on Taran is slowly gettin more and more freaked out. When the anesthesia guy turns around with the little IV needle she lost it. She hates needles. Lots of screamin and kickin and I finally stopped it. One of the nurses was so upset she had to leave. Not happy with the doctor at all. Neither was I. So he says, "Well lets head over to MRI and we will just give her a little sleepy gas first."

"We aren't at MRI ?"

"Oh no, we still have to go over there. We are already set-up with the gas, so it should go smoothly."

"NICE. Why the **** did we go thru all this crap and upset her when we could have just went there and done the gas thing IN THE FIRST PLACE!!!"

He had no answer and I was gettin pissed. So we go over to MRI and the nurse in charge was like, "Where have you been? We are all set up to gas her and go!" Takin the doc to task. I liked it. She seemed competent and I started to think that things were gonna be alright. She goes into the room and some other woman comes up and tells us that "We got it from here, you need to goto the waiting room."

Last straw. My wife EXPLODED on this broad.

"If you think for one minute that we are going to let you scare the hell out of her and then walk away and LEAVE her with you, you are ****ING CRAZY!!! (No shit) My husband WILL BE going in with her and if you don't like it, we are leaving!!!"

The first nurse comes back out and tells the second to just leave, and that everything is fine and she is in charge now. Thank GOD.

It still was pretty hectic. Taran didn't want to have anything to do with the "magnet machine". She heard eveyone talkin about how you can't have any metal on in the room and how I would have to empty my pockets and such. Scared her even more. Then when the guy came at her with the mask for the knock-out gas, damn. The fight was on again. She was having NONE of it. But finally she started calming down. The gas was working. I was holding her in my arms, trying to keep her hands down and away, talking to her, stroking her hair, tryin to get her calmed down. With all the struggling going on the mask was lettin gas out and I was gettin it to. Almost fell down when I turned to go.

So she finally got knocked out and they were able to tap her vein and get the IV started to do the job. **** what a nightmare. As good as Loran is with it, Taran was the total opposite.

And again it was horrible to see my child go unconscious and get that damn tube rammed down her throat so she won't choke. The way they act and breathe and stuff is so unnatural that is deeply upsetting.

She came out and went to a room to recover. My wife went in this time. I could here her screaming and crying as she woke up. Loran was so upset hearing her sister that she was crying to. It was a very hard day. Poor baby.

We finally got home around 7pm. Taran went to sleep at 730pm and woke up today at 830. She has been in a great mood all day and eatin like a horse. One of the drugs they knock you out with is Vercet (sp) which has the added benefit of messin with the short term memory so she doesn't even remember most of it. Lucky girl.

The doc called a while ago and said that her test came back normal. Nuthin in there 'cept whats supposed to be. WHEW!!

Now they just got to keep workin on it to figure out what it is.
 

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thats good to here that the tests came back normal. Im shour that is a big relif.
 

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My wife is sitting right next to me, she doesn't speak english but I just translated some of this thread for her and she wants me to tell you that our prayers are with you and your close ones.

We're also glad your eldest's tests came out good.
 

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Well Joe Drew just got back from NY and we get his hama test results back on Tuesday. We are in real need to be negative so we can start back with treatments. No treatments mean cancer has it own way..:doh0715:
 

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Hey Joe, I know how hard it is with the chemotherapy. my mom was diagnosed with non hodgkins lymphoma when i was in tenth grade and then again my first year of college. she went through chemo and radiation. and doing much better. I hope you're daughter is doing much better.
 
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