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Addicted to Junk
85 Bronco, 309ci I6 w/4bbl, np435, 4" lift, 37" Irok NDs, 4.56 w/ Detroit Locker and tru trac
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Dang, I wish there was something I could do. Or say. Still praying for you both. Hang in there Justin, the Good Lord will make things right in the end. Put your lives in His hands.
 

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Discussion Starter #42
You and me both, my friend. One of the worst helpless feelings.

And yes, knowing He's there for me is how I get through every day.
 

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You and me both, my friend. One of the worst helpless feelings.

And yes, knowing He's there for me is how I get through every day.
So true, as many of us have done
Corinthians 13: 6-7
"Love never gives up, never loses faith, is always hopeful, and endures through every circumstance.

Thessalonians 4:17
Then we who are alive, who are left, will be caught up together with them in the clouds to meet the Lord in the air, and so we will always be with the Lord.
 

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Let me first say I can sympathize with what you're going through. I know the emotional roller coaster and toll it takes. You're doing the right thing by reaching out, even for moral support..My wife was diagnosed back in 2014. She was about 4 years older than your wife is now..Worst day of my life when we got the pathology report, she was actually sitting in car pool at school picking our kids up. We have 2 daughters and all I kept thinking about was she's going to be gone and the girls won't have a mom anymore. After the first surgery, she had a recurrence then went back for a 2nd operation and radiation. We went through months, then years of follow ups and specialists, and while she's ok now, it's always looming in the back of our minds. We count our blessings every single day. I can tell by your post that your wife's situation is more severe..My best advice is try to enjoy every moment, even the little things, stay as positive as you can, and just be there for her. If you have the time and means and she's able, maybe take a small vacation together. Sometimes getting away for a bit helps..whatever you do, try to stay strong and know you've got your FSB pals here for support..

All the best.
 

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Discussion Starter #47
@jermil01 Man, that breaks my heart to read that, because I could sympathize with you every step of the way. I'm thankful to hear that things are seeming to be stable and going well. That's one thing we kept waiting to hear, but never came, so definitely count your blessings!

Really trying to take her on some trips. I know I wanted to take her to Italy this summer, and had planned to. But she's gotten so sick that she can't go a few days without ending back up in the hospital, which really bothers me. It's unfair...
But if they can help her get that under control, we're going.

@White Dragon That's a good idea, I'll contact them. What's the worst that can happen?
 

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House of Windsor 4ever!
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I haven't been on here for a few months, and when I saw this thread, it was the first I'm responding to. I'll certainly say some prayers for your wife, as well as some for you. Be strong, be clear-headed, and though it sucks to even think about it, make sure you and your wife go over everything you need to for your family, your finances, any preparations necessary. Because if they're undone, they are so much tougher to deal with when you're overcome with emotions.
 

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Discussion Starter #49
I haven't been on here for a few months, and when I saw this thread, it was the first I'm responding to. I'll certainly say some prayers for your wife, as well as some for you. Be strong, be clear-headed, and though it sucks to even think about it, make sure you and your wife go over everything you need to for your family, your finances, any preparations necessary. Because if they're undone, they are so much tougher to deal with when you're overcome with emotions.
Thank you, I appreciate it.

Yes, when I first learned that this was all going the direction it is, that was one of the initial discussions I had with her.
As much as it sucks, we need to get all our financials in order. Her wishes and will written down and documented. I need to know the billing information, banking passwords, etc. Let's get it done, over with, behind us, and then we don't need to think about it again.

There's been a little good news lately. They finally found that the passageway between her liver and digestive system was completely blocked, which made her liver completely backed up. Symptoms include exhaustion, pain, and terrible nausea. Basically everything she's been going through. She just underwent surgery yesterday to start getting it corrected/fixed. It's no long term solution, but it should give her a heck of a lot better quality of life. Something she hasn't had much of recently. Out of the last 6 weeks, I think she's spent 5 of them in the hospital, so I'm glad they were able to figure out why and can get her on the right track.
 

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I'm thankful they found that @AbandonedBronco and will be praying she will get relief from those symptoms.
 

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Premium 4 Lyfe - Way Back Staff
'95 XLT: 5.8, MAF, E4OD, 4.56's, 6" on 33's
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Hope the surgery goes smoothly and she can relax at home with you for as long as possible.
 

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Hope it gets her well enough for the trip to Italia. Magical place that I believe everyone should visit given the chance. I have spent much time there and could be a resource for planning. God bless.
 

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Thoughts and prayers my friend. I've been working at cancer centers for the last 15 years (clinical trials).

If I could add one thing it would be to ensure she sees a palliative care specialist. Many patients wait until it's to late to really benefit as they think by going to see them, they are throwing in the towel and admitting defeat.

It's not just for hospice though. They can really kick the doors wide open on pain/symptom management and can help you come to a decision on what she wants the next 8 months (or maybe more) to look like.

If she recovers well from that billiary surgery and feels good, go ahead and buy those tickets to Italy.

I also would encourage another opinion at a large academic center (I know you have at least been to one) or even give a call to the NCI Clinical Center in Bethesda, MD to see if they would review her case. They are on the cutting edge and if accepted into their program for a trial, treatment is free.



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Addicted to Junk
85 Bronco, 309ci I6 w/4bbl, np435, 4" lift, 37" Irok NDs, 4.56 w/ Detroit Locker and tru trac
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Hey bud, just checking in. How are things going since the surgery?
 

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Premium 4 Lyfe - Way Back Staff
'95 XLT: 5.8, MAF, E4OD, 4.56's, 6" on 33's
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Was also thinkin' 'bout you and the lil' woman today. Hope you're just too busy celebratin' a great outcome.
 

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Discussion Starter #57
Thoughts and prayers my friend. I've been working at cancer centers for the last 15 years (clinical trials).

If I could add one thing it would be to ensure she sees a palliative care specialist. Many patients wait until it's to late to really benefit as they think by going to see them, they are throwing in the towel and admitting defeat.

It's not just for hospice though. They can really kick the doors wide open on pain/symptom management and can help you come to a decision on what she wants the next 8 months (or maybe more) to look like.

If she recovers well from that billiary surgery and feels good, go ahead and buy those tickets to Italy.

I also would encourage another opinion at a large academic center (I know you have at least been to one) or even give a call to the NCI Clinical Center in Bethesda, MD to see if they would review her case. They are on the cutting edge and if accepted into their program for a trial, treatment is free.



Sent from my Pixel 3a XL using Tapatalk
Hey Justin (good name!)
Yes, we've been discussing with palliative care quite a bit. She just hadn't been home enough in the last month or two to need it. But once she is, it's something we'll look into. I know she freaked when she first heard it suggested to her, but was a lot more receptive when told that it's simply to make her comfortable through her treatments.

Thank you for the recommendation to the NCI clinic. The more options the better. The hard part is that we've been told through numerous venues that there are two (and only two) approved immunotherapy drugs to help treat her type of cancer. We tried one and it didn't work, and she's trying the other right now. Otherwise, no clinical trials are going on. But, who knows what'll open up.
 

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Discussion Starter #58 (Edited)
Hey bud, just checking in. How are things going since the surgery?
Was also thinkin' 'bout you and the lil' woman today. Hope you're just too busy celebratin' a great outcome.
Thanks for checking in guys. It's been sloooow.
She's been in the hospital since, trying to keep the pain managed. But, the good news is that her nausea has lessened a LOT. She's been able to eat more, and I've brought her a number of different things to eat, depending on whatever she's in the mood for. Makes me happy.

She's only 1 for 2 surgeries still. Still working on clearing everything out and getting inflammation down. Next will be the bypass to get everything working again.

Other good news is that her pain has lessened enough that she's able to stay off the IV. If she can keep that up, she'll be coming home tomorrow and hopefully can stay a while.
 

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82 XLT Lariat 351w, Edelbrock 1406 4bbl ,C6 auto, auto locking hubs ,33x10.5x15
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That's awesome news... Hope she can come home. I'm sure she's totally ready to be out of the hospital and ur ready to have her home ❤
 

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Discussion Starter #60
That's awesome news... Hope she can come home. I'm sure she's totally ready to be out of the hospital and ur ready to have her home ❤
Absolutely. I can't imagine how stir crazy she must be going.
 
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